But what’s interesting to me is that I’ve never read about the pain that’s caused simply by socially interacting by typs (typicals) while in my chair. You’d think that it would be obvious at we are seated and not standing. I for certain notice that they are standing, you’d think the reverse would be true as well, but apparently not.
I had just met someone, a fellow my age, and we were talking. I was enjoying the conversation but was beginning to get a little sore. He stood, as so many people do, just a little behind my chair which required me to turn way round while looking up. It’s not an easy position for me.
You may be wondering one of two things:
1) Why didn’t I turn my chair around so that I could chat comfortably? Well, there simply wasn’t the room, there were a lot of people around and my chair was positioned such that any movement would endanger the ankles of those around me.
2) Why didn’t I simply ask him to move forward? That’s a more difficult question. It’s hard enough to meet people, to have these casual chats that are part of what we all want from community – connectedness – without breaking the flow of things to get them to accommodate you by moving. People often respond so awkwardly and sometimes with great embarrassment. So, I’m okay sometimes thinking that I don’t want to educate I just want to participate.
But then this happened.
A woman passed by, someone I don’t know and haven’t ever seen before, and noticed where he as standing and how my body was twisted to accommodate his stance. She marched over, and yes people with walker can march over. She came from behind him, took him by his shoulders and pushed him forward. She said, “Can’t you see how he has to sit when you stand behind him like that??”
Then, before leaving, she said to me, “You’re welcome.”
I was gobsmacked.
Yes, I was in pain by the time she came over. But it’s my choice as to what to do about it. I do have the assertion skills and the social skills to deal with it. And. I’m a really good decision maker.
I get what she was doing but the fact that she understood the situation, visually, she didn’t understand the situation internally. More than that she had no right to touch his body or to shove him forward. It’s outrageous behaviour.
Her disability doesn’t give her permission to take away my personal agency.
Well, it all ended badly of course. He was mortified. So was I. He asked me if it had been uncomfortable for me to chat with him because of where he stood, I said that it was but that I was enjoying the conversation and hadn’t wanted to interrupt it. That didn’t save it. He apologized and fled.
Thanks for the help.
I feel discomfort after long hours in the chair.
I feel physical pain sometimes in interacting with others.
But those are my problem and I have my own solutions and choices.
No one gets to make them for me.